Lucia Di Liello
I’m sure we all remember the 2014 ice bucket challenge to raise money and promote awareness for amyotrophic lateral sclerosis (ALS, also known as Lou Gehrig’s disease). Little did my family and I know how much this disease would affect us until 2016, when my husband, Jacques, got diagnosed with ALS. June 5th was the 2nd anniversary of my husband’s passing from ALS.
ALS is a fatal neurodegenerative disease that leads to the progressive loss of motor neurons in the brain and spinal cord, resulting in muscle wasting and weakness. Eventually, affected individuals are unable to walk, talk, eat, swallow and eventually breathe.
There is currently no cure for ALS and most individuals will pass within 2 to 5 years of diagnosis.
For the past 2 years, we participated in the Walk to End ALS. This year, due to COVID-19, the Walk will go virtual. The Walk will take place on June 21st, as this date is Global ALS Awareness day.
I understand that these are unprecedented times, and that some may not be able to give right now. If you are able to donate, it would mean a lot to all of the families affected by ALS, to science and to funding ground-breaking research, and finally, to me, in keeping my husband’s memory alive.
Thank you. I hope everyone is staying safe.